Adherence to Physiotherapy
LESSON 1: Defining and understanding adherence in CF
Aronson JK 2007 Compliance, concordance, adherence (Editorial) Br J Clin Pharmacol 63:4 383–384 383 DOI:10.1111/j.1365-2125.2007.02893.x
Bauman, L. J., E. Wright, F. E. Leickly, E. Crain, D. Kruszon-Moran, S. L. Wade and C. M. Visness (2002). “Relationship of adherence to pediatric asthma morbidity among inner-city children.” Pediatrics 110(1 Pt 1): e6.
Berg, J. S., J. Dischler, D. J. Wagner, J. J. Raia and N. Palmer Shevlin (1993). “Medication compliance: a healthcare problem.” Annals of Pharmacotherapy 27(Suppl 9): S1-S24.
Briesacher, B. A., A. L. Quittner, L. Saiman, P. Sacco, H. Fouayzi and L. M. Quittell (2011). “Adherence with tobramycin inhaled solution and health care utilization.” BMC Pulmonary Medicine 11: 5.
Conway, S. P., M. N. Pond, T. Hamnett and A. Watson (1996). “Compliance with treatment in adult patients with cystic fibrosis.” Thorax 51: 29-33.
Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ Identifying Barriers to Treatment Adherence and Related Attitudinal Patterns in Adolescents With Cystic Fibrosis. Pediatric Pulmonology 45:450–458 (2010)
Eakin MN, Bilderback A, Boyle MP, Mogayzel PJ, Riekert K. Longitudinal association between medication adherence and lung health in people with cystic fibrosis. Journal of Cystic Fibrosis 10 (2011) 258–264
Faint, N. R., J. M. Staton, S. M. Stick, J. M. Foster and A. Schultz (2017). “Investigating self-efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis.” Journal of Paediatrics & Child Health 53(5): 488-493.
Flores JS, Teixeira FA, Rovedder PME, Ziegler B, de Tarso Roth Dalcin P. Adherence to Airway Clearance Therapies by Adult Cystic Fibrosis Patients Respir Care 2013;58(2):279 –285.
Jones M, Moffatt F, Harvey A, Ryan JM. Interventions for improving adherence to airway clearance treatment and exercise in people with cystic fibrosis. Cochrane Database of Systematic Reviews 2023, Issue 7.
Kamper, S. (2012). The Psychosocial Effects of Cystic Fibrosis. https://pdfs.semanticscholar.org/e87b/bdf7da8fa6cabd856bc4b41b8d8163d9a633.pdf
Latchford G, Duff A. A guide to adherence in CF. Department of Clinical and Health Psychology, St James’ University Hospital, Leeds. 2011.
Mikesell CL, Kempainen RR, Laguna TA, Menk JS, Wey AR, Gaillard PR, Regelmann WE.Objective Measurement of Adherence to Out-Patient Airway Clearance Therapy by High-Frequency Chest Wall Compression in Cystic Fibrosis. Respir Care 2017;62(7):920 –927.
Modi AC, Cassedy AE, Quittner AL, Accurso F, Sontag M, Koenig JM, Ittenbach RF. Trajectories of Adherence to Airway Clearance Therapy for Patients with Cystic Fibrosis. Journal of Pediatric Psychology 35(9) pp. 1028–1037, 2010 doi:10.1093/jpepsy/jsq015
Muther, E. F., Butcher, J. L., & Riekert, K. A. (2020). Understanding treatment adherence in cystic fibrosis: Challenges and opportunities. Cystic Fibrosis: A Multi-Organ System Approach, 449-463.
O’Donohoe R, Fullen BM. Adherence of Subjects With Cystic Fibrosis to Their Home Program: A Systematic Review. Respir Care 2014;59(11):1731–1746.
Sawicki GS, Heller KS, Demars N, Robinson WM. Motivating Adherence Among Adolescents With Cystic Fibrosis: Youth and Parent Perspectives. Pediatr Pulmonol. 2015;50:127–136.
Sherman, A. C., O’Brien, C. E., & Simonton-Atchley, S. (2024). A Longitudinal Study of Adherence among Cystic Fibrosis Patients: Associations with Gratitude Over the Course of One Year. International Journal of Behavioral Medicine, 1-9.
Weiss, K. B., P. J. Gergen and T. A. Hodgson (1992). “An economic evaluation of asthma in the United States.” New England Journal of Medicine 326(13): 862-866.
Zanni RL, Sembrano EU, Du DT, Marra B, Bantang R. The impact of re-education of airway clearance techniques (REACT) on adherence and pulmonary function in patients with cystic fibrosis. BMJ Qual Saf 2014;23:i50–i55. doi:10.1136/bmjqs-2013-002352
LESSON 2: Enhancing healthcare communication
Duff A, Latchford G Using MI to successfully navigate patient adherence issues in CF www.advancmed.org/839mi2008
Duff A, Latchford G Motivational Interviewing for Adherence Problems in Cystic Fibrosis; Evaluation of Training Healthcare Professionals J Clin Med Res 2013;5(6):475-480
Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ Identifying Barriers to Treatment Adherence and Related Attitudinal Patterns in Adolescents With Cystic Fibrosis. Pediatric Pulmonology 45:450–458 (2010)
Latchford G, Duff A. A guide to adherence in CF. Department of Clinical and Health Psychology, St James’ University Hospital, Leeds. 2011.
Latchford G, Duff A. Adherence Toolkit. Department of Clinical and Health Psychology, St James’ University Hospital, Leeds. 2011.
Lundahl B, Moleni T, Burke BL, Butters R, Tollefson D, Butler C, Rollnick S. Motivational interviewing in medical care settings: A systematic review and meta-analysis of randomized controlled trials. Patient Education and Counseling 93 (2013) 157–168
Rollnick S, Miller WR. What is motivational interviewing? Behav Cogn Psychotherapy.1995;23:325-334.
Sawicki GS, Heller KS, Demars N, Robinson WM. Motivating Adherence Among Adolescents With Cystic Fibrosis: Youth and Parent Perspectives. Pediatr Pulmonol. 2015;50:127–136.
LESSON 3: Proactive strategies to support adherence with Children and families
Anton-Parduraru DT, Ciubara A, Miftode E Psychosocial aspects in children with cystic fibrosis. Research in Social interventions (Revista de Cercetare Intervenie Social) 48: 204-215, 2015
Bishay LC, Sawicki GS. Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis. Adolescent Health, Medicine and Therapeutics 2016:7 117–124
Butcher JL, Nasr SZ. Direct Observation of Respiratory Treatments in Cystic Fibrosis: Parent–Child Interactions Relate to Medical Regimen Adherence. Journal of Pediatric Psychology 40(1) pp. 8–17, 2015 doi:10.1093/jpepsy/jsu074
de Graaf I, Speetjens P, Smit F, de Wolff M, Tavecchio L. Effectiveness of the Triple P Positive Parenting Program on Parenting: A Meta-Analysis. Family Relations, 57 (December 2008), 553–566. Wiley Periodicals, Inc.
Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ Identifying Barriers to Treatment Adherence and Related Attitudinal Patterns in Adolescents With Cystic Fibrosis. Pediatric Pulmonology 45:450–458 (2010)
Eakin MN, Bilderback A, Boyle MP, Mogayzel PJ, Riekert K. Longitudinal association between medication adherence and lung health in people with cystic fibrosis. Journal of Cystic Fibrosis 10 (2011) 258–264
Flores JS, Teixeira FA, Rovedder PME, Ziegler B, de Tarso Roth Dalcin P. Adherence to Airway Clearance Therapies by Adult Cystic Fibrosis Patients Respir Care 2013;58(2):279 –285
Grossoehme DH, Szczesniak RD, Britton LL, Siracusa CM, Quittner AL, Chini BA, Dimitriou SM, Seid M. Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors. Ann Am Thorac Soc Vol 12, No 6, pp 838–846, Jun 2015
Grossoehme DH, Szczesniak RD,Mrug S, Dimitriou SM, Marshall A, McPhail GL. Adolescents’ Spirituality and Cystic Fibrosis Airway Clearance Treatment Adherence:
Examining Mediators. Journal of Pediatric Psychology, 41(9), 2016, 1022–1032 doi: 10.1093/jpepsy/jsw024
Oates GR, Stepanikova I, Gamble S, Gutierrez HH, Harris WT. Adherence to Airway Clearance Therapy in Pediatric Cystic Fibrosis: Socioeconomic Factors and Respiratory Outcomes. Pediatr Pulmonol. 2015 December; 50(12): 1244–1252. doi:10.1002/ppul.23317.
O’Donohoe R, Fullen BM. Adherence of Subjects With Cystic Fibrosis to Their Home Program: A Systematic Review. Respir Care 2014;59(11):1731–1746.
Pickering JA, Sanders MR. The Triple P-Positive Parenting Program- A public health approach to evidence-based parenting support. Family Matters 96, 53-63 2015
Savage E, Beirne PV, Ni Chroinin M, Duff A, Fitzgerald T, Farrell D. Self-management education for cystic fibrosis. Cochrane Database of Systematic Reviews 2014, Issue 9. Art. No.: CD007641. DOI: 10.1002/14651858.CD007641.pub3. www.cochranelibrary.com
Sawicki GS, Heller KS, Demars N, Robinson WM. Motivating Adherence Among Adolescents With Cystic Fibrosis: Youth and Parent Perspectives. Pediatr Pulmonol. 2015;50:127–136.
Zanni RL, Sembrano EU, Du DT, Marra B, Bantang R. The impact of re-education of airway clearance techniques (REACT) on adherence and pulmonary function in patients with cystic fibrosis. BMJ Qual Saf 2014;23:i50–i55. doi:10.1136/bmjqs-2013-002352
Quittner AL, Goldbeck L, Abbott J, Duff A, Lambrecht P, Solé A, Tibosch MM, Bergsten Brucefors A, Yüksel H, Catastini P, Blackwell L, Barker DPrevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries. Thorax. 2014 Dec;69(12):1090-7. doi: 10.1136/thoraxjnl-2014-205983. Epub 2014 Sep 21.
LESSON 4: CF Adherence Guide and Toolkit
Latchford G, Duff A. A guide to adherence in CF. Department of Clinical and Health Psychology, St James’ University Hospital, Leeds. 2011.
Latchford G, Duff A. Adherence Toolkit. Department of Clinical and Health Psychology, St James’ University Hospital, Leeds. 2011.
